Ryckmania

Adventures in Homeschooling, crafts and more

Miss E’s hemangioma

3 Comments

Miss E was born on september 7th, after a discouraging labor that turned around very quickly. She had no marks. So different from my swollen, bruised baby boy…

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When she was a couple of weeks old I started noticing a reddish bruised spot on her eyelid. I thought maybe she scratched herself. I didn’t give it much thought, but a couple of weeks later, it was still there and it started growing slightly, making it so her eyelid looked a little droopy.

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It was diagnosed as a Cavernous or ‘Deep’ Hemangioma when she was 3 months old. A hemangioma is a benign tumor composed of blood vessels. It is purely cosmetic in most cases and not a cause for alarm unless it is obstructing airways or located on or by the eyes, like miss E’s. On the eyelid it can permanently damage a baby’s developing cornea and eyesight, and in more serious cases cause blindness. We have been to the optometrist and as of right now it isn’t putting pressure on her cornea and shouldn’t damage her sight, however this is something we have to watch and recheck every couple of months. Hemangiomas can grow at an alarming rate.

Somedays you can’t tell unless you know, others it is more obvious, but one thing I know! She is perfect in every way!

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Author: ryckmania

I am a military wife & a mother of 2.

3 thoughts on “Miss E’s hemangioma

  1. She is so beautiful…
    My daughter is 9 weeks old and the hemangioma started to appear around Christmas time and was more noticable when she was around 6-7 weeks old. Like what you said about your daughters’ is sometimes noticeable and sometimes not. But as a mother you’re always worried about the worse that can happen. Like affecting their eye sight. Did your daughters’ grow bigger and when did it stop growing and started to go away? I’m stressed and don’t know who else to consult besides mother’s who shares their similar stories online.

    Your reply is greatly appreciated.

    • Hi there 🙂 My daughter’s hemangioma actually seems to have moved slightly and it sits mostly behind her eye now, but it hasn’t grown since she was about 3-4 months. Her eye lid is a little droopy by the tear duct but it is hard to see when she is awake. When she sleeps it looks like a bulge. We see the eye doctor every 6 months, and while it seems to have started affecting her sight slightly it isn’t enough to need glasses yet (and we are not sure whether it will ever really get to that point.) He said they can take several years to start shrinking, so we are waiting. I can relate to your feelings, it is very stressful to wonder how big it will get or whether it will affect the sight, and strangers’ comments certainly do not help! Has your sweet baby been seen for it? have they mentioned treatment? some states do the Propranolol treatment and it has been pretty successful in many cases!
      I wish you and your little girl the best of luck on your journey 🙂

  2. I have just found out that one of my twin boys has a heamagiona. He is 13wks old. I noticed something on the outer edge of his eyelid 3 wks ago. Doctor thought at first he had just been bitten by something. Went to peadiatritian on the 2nd week & he thought nothing of it. Then seen another peadiatritian & he confirmed it & sent us to an eye specialist. Due to see peadiatritian again to start Beta Blocker medication to stop growth/reduce it.

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