Ryckmania

Adventures in Homeschooling, crafts and more

Hemangioma update

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I get quite a few questions on my Hemangioma post so I figured I would update it 🙂

Little Miss E’s Hemangioma stopped growing when she was about 4 months and lodged itself behind her eye. When she is awake her eyelid  looks slightly droopier and hardly noticeable unless she is sick or crying. When she sleeps it sits right on the eyelid and it is much more obvious.

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At our last appointment with the eye specialist it was determined that it has affected her sight very slightly and treatment was brought up. I asked about Propanolol (a beta blocker) but was told they don’t offer it and the only treatment option would be to inject the hemangioma directly. I weighed the pros and cons and decided not to put her through it. The doctor agreed with my decision and wrote down her prescription on her file (no glasses yet) and we went on our way. We get to see him every 3 months to recheck her eyes.

As of right now I don’t see a difference in size. It looks the same, some days more obvious and some days hardly noticeable, but it can take up to age 7 to shrink, so we wait.

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Please if you have any questions or just need to chat about it let me know. I know at first when I noticed it growing my support system were other mothers whose babies had gone through the same thing, as no one else knew what it was (the pediatrician included).

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Author: ryckmania

I am a military wife & a mother of 2.

One thought on “Hemangioma update

  1. Thank you so much for an update on your daughter..

    I can hardly see her heamangioma. Only slightly noticeable when she is asleep but I know what I’m looking for whereas other people probably wouldn’t know she had one.

    Update- My 14wk old spent 4-5hrs in hospital Friday to be monitored as he started his propanalol liquid medication. His blood pressure & sugar levels had to be checked every hour. Thankfully he has been good on the medication. He has 3.5ml morning & night. Just a waiting game to see if his heamangioma stops growing & hopefully disappears. Will keep you posted.

    Thanks for sharing your experience : )

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